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CFS-Allicin FAQ

FAQs
From the list below choose one of our FAQs topics, then select an FAQ to read. If you have a question which is not in this section, please contact us.

What is Allicin?

Where Can I Buy Allicin?

How Many Capsules Should I Take?

How Many Capsules is it Safe to Take?

Will I Need to take Allicin Forever?

Does Allicin Taste Like Garlic?

Can I Take Allicin with my Medicines?

What Else can I Take Allicin For?

Chronic Infections?

How Long Does it Take to Work?

What Are ‘Herx’ Reactions?

Can I Take Anything For the Herx?

What Supplements Should I Take?

Where Can I Buy Supplements?

What is the AYME scale?

What is Allicin?

Allicin is a highly unstable substance produced from garlic which has been shown to be powerfully antibacterial, antiviral and antifungal. Allicin International holds the patent for producing stabilised allicin and only products with the Allisure® will guarantee a high yield of allicin in a form that is quickly absorbed by the body. You will not get the same result taking garlic capsules or eating garlic. For futher information on how allicin is made go to http://www.allimax.com.

Research has shown allicin to have additional benefits in the body, including being anti-tumour, anti-cancer, lowering blood pressure, treating cardiovascular disease and also diabetes; as well as boosting the immune system. These are mostly at early research stages at the moment, but producing very positive results.

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Where Can I Buy Allicin?

From August 2007 in the UK Allicin is sold under the brand name AllicinMax and this can be bought at Boots the Chemist, or online at http://www.quickvit.co.uk and also http://www.nutritioncentre.co.uk. AllicinMax capsules contains 180mg of allicin powder and are sold in packs of 30 capsules.

Worldwide, allicin is also sold under the brand name Allimax and additionally Allimed and AlliUltra in the USA.

Please note that in the UK “Allimax” is a disputed trademark and from August 2007 Allimax capsules sold in the UK contain no allicin – just garlic powder. Check for the Allisure® guarantee.

TopHow Many Capsules Should I Take?

At this moment in time there is no definitive guidelines as to how many allicin capsules will successfully treat chronic fatigue syndrome. The best guidance is to start off with one capsule a day and be aware of any reactions in your body. For some people, one capsule a day will elicit a herxheimer reaction, indicating that the dose is sufficient to begin killing any bacteria or other infections. For other people a higher starting dose is required. Please read through our information and collective experiences to help understand the process; this will enable you to make an informed decision as to whether allicin treatment may help you.

TopHow Many Capsules is it Safe to Take?

Allicin International claims it is safe to take up to 777 capsules at one go! So basically the chance of an overdose is very slim.

TopWill I Need to take Allicin Forever?

Not in such high doses! The theory on which this idea is based suggests that eventually the infections will be killed which means the treatment is finite. It is difficult to assess a time scale as each individual will be different. You may wish to continue taking allicin at a low ‘maintenance’ dose as it does offer good immune support.

TopDoes Allicin Taste Like Garlic?

Allicin does not cause a lingering garlic odour in the way that taking garlic capsules does. In some cases people have reported a strong smell and taste of garlic while taking the capsules but it is thought that this may be due to some people having hypersensitive senses of smell/taste due to cfs. The majority report no adverse smell or taste in taking the allicin capsules.

TopCan I Take Allicin with my Medicines?

Allicin International claims that allicin can be taken with all medications with no adverse effects. However they do advise that if you are diabetic or on blood thinners or blood pressure medication you check with your doctor. Always err on the side of caution – if in doubt, please check with your doctor.

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What Else Can I Take Allicin For?

Allicin has been proven to have powerful antibiotic, antiviral and antifungal properties. Research suggests allicin may be beneficial in many conditions, including:

  • Acne
  • Cancer and helping the body cope with treatment
  • Candidiasis
  • Chronic Fatigue Syndrome
  • Coldsores and certain other Herpes infections
  • Colitis
  • Common Colds & Infections
  • Diabetes
  • ‘Flu
  • H-Pylori
  • Hayfever
  • Heart Health
  • High Blood Pressure
  • IBS
  • Leaky Gut
  • Lyme Disease
  • MRSA
  • Nail Fungus
  • Parasites
  • VRSA

Ongoing research is investigating links between infections such as chlamydia pneumoniae and Alzheimer’s Disease, Parkinson’s Disease and Multiple Sclerosis as well as heart conditions and high blood pressure – which can lead to heart attack and stroke. This research is in early stages and nothing definitive has emerged, but if any link emerges, then it may be possible that taking allicin may help reduce the chance of developing certain conditions. Please note this is currently speculation.
Chronic Infections?

This natural treatment is based on emerging research which suggests that people with chronic fatigue syndrome may suffer from chronic infections. New technology and probing into different body tissues has allowed researchers to discover hidden infections which cannot be detected with normal blood tests. As this is relatively new research, it may take some time to become an accepted fact. It may eventually be shown to be the cause of CFS, or it may be an additional factor. At the moment this is unknown, however what some treatment protocols are showing, is that getting rid of the infection(s) is of great benefit to sufferers.

TopHow Long Does it Take to Work?

Again, this depends on each individual. The Marshall Protocol and the Wheldon Protocol which are based on a similar theory, but use antibiotics, estimate it will take up to three years to fully eradicate the infections from the body. However, it is believed that a return to a normal lifestyle will be possible in less time than this. In our experiences, we began to see little improvements very early on – within the first two months. As we are all at different stages and taking different amounts of allicin, it is difficult to specify exact times, but what became obvious was that everyone was recovering a feeling of hope and positivity, indicating that the little improvements were steady and constantly building.

TopWhat Are ‘Herx’ Reactions?

Jarisch-Herxheimer reactions (or ‘die-off’) occur because the bacteria release toxins as they are killed. Herx reactions can vary in severity and in some cases may require medical treatment – this is why we advocate a very gradual approach if you make the decision to try this, or a similar, form of treatment. Herx reactions were discovered by a Dr. Jarisch and a Dr. Herxheimer at the turn of the 20th century. Both doctors reported an escalation of symptoms after treatment for syphilis before the patient was healed. Herx reactions may seem like a return of severe symptoms, or a particular symptom and are likely to make you feel worse before you feel better. It is believed that they happen when the toxins are being produced at a faster rate than the body can eliminate them.

TopCan I Take Anything For the Herx?

Drinking lots of water or herbal teas will help the body flush out the toxins. We also recommend raising antioxidant levels in the body, as this will help too. Eating the recommended five-a-day portions of fruit and vegetables is a good start, but to significantly raise antioxidant levels this way at least eight-a-day is recommended. You can take antioxidant supplements including vitamins A,C,E and Selenium – these are usually relatively inexpensive.

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What Supplements Should I Take?

There is some evidence that some supplements are of benefit to some people with CFS and not to others. It is therefore difficult to produce a definitive list of supplements for anyone with CFS.

The Wheldon Protocol advocates certain supplements and gives a lot of information about why the supplement may be useful. That supplement chart can be downloaded here:

http://www.cpnhelp.org/allsupplementspdf

Supplements which may be useful include:

  • N-Acetyl-Cysteine
    • May help to expose bacteria and aid in destruction
    • Precursor to glutathione, helps enhance glutathione levels in body
  • Alpha Lipoic Acid
    • Precursor to glutathione, helps enhance glutathione levels in body
    • Antioxidant
  • Neem
    • A purifying herb with antibacterial and antiviral properties
  • Vitamins A,C & E
    • Antioxidants
  • Selenium
    • Antioxidant
  • Co-Enzyme Q10
    • Supports mitochondrial function and enhances cell energy production
    • Support the heart
  • Probiotic/Acidophilus
    • Promotes healthy gut flora balance
    • Is not destroyed by allicin; is destroyed by conventional antibiotics

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Where Can I Buy Supplements?

The following sites are sites that we use, or that we have been notified about that seem to offer fair prices and good service. There are many more websites offering the same supplements if you wish to shop around.

Links coming soon!

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What is the AYME scale?

*Ability Scale For Children And Young People With ME*
*The ability scale is used with permission from AYME*

Please note: The ABILITY SCALE has been drawn up for children and young people. We feel it is equally suited to adults and should only be used as a guide.

When using this scale it is important to remember that:

  • Flexibility in its use will help all concerned
  • There is no predictable pattern to M.E.
  • Many may fall between each noted percentage
  • Fluctuations will occur over short periods of time

Flexibility
This scale should be viewed flexibly; used to assist children and young people to pick that which best describes their functional ability level. It is important for them to have significant input into their own chart, thus increasing personal control over their illness. It may be that a young person is at a different point on the scale regarding their mental functioning from their physical ability. Clinicians and carers should not view 50% ability as meaning, for example, that a patient is able to walk half the distance of a healthy person. Terms such as ‘part-time’ should be viewed as a ‘few hours’, but only the child or young person will really know how much is right for them.

Predictable Pattern
It should not be assumed that movement on the scale means the beginning of a continued downward slide or continued improvement. Young people can make sudden, large jumps, or become stable at one level for a time and then make a sudden or gradual move in either direction. Large increases are not, necessarily, indicative of ‘being over ME’. Careful and supportive management, with the young patients being able to pace themselves in a way that is most comfortable to them, will see improvement over time. It may take many days to recover from an activity, mental or physical, that pushes them beyond their capability.

Falling between scales
Young people may find themselves as falling between the noted points on the scale. They should be encouraged to fit in their own wording that matches their present capacity and functioning.

Fluctuations
Fluctuations on the scale may occur, with variations often seen over single days or weeks, especially if the young patient is expected to do more than can be managed with ease. It may be useful to note the point on the scale on a ‘good day’ as well as a ‘bad day’.

AYME Ability Scale – original scale published in Somebody Help ME (1995*3) by Jill Moss

FULLY RECOVERED
100% No symptoms even following physical or mental activity. Able to study and work full time without difficulty, plus enjoy a social life.

VIRTUALLY RECOVERED
95% No symptoms at rest. Mild symptoms following physical or mental activity – tire rather easily but fully recovered next day. Able to study or work full time without difficulty but a slight restriction on social life.

MILDLY AFFECTED
90% No symptoms at rest. Mild symptoms following physical or mental activity – tire easily. Study/work full time with some difficulty. Social life rather restricted with gradual recovery over 2/3 days.

80% Mild symptoms at rest, worsened to moderate by physical or mental activity. Full time study at school/ college is difficult, as is full-time work, especially if it is a crowded, noisy or busy environment. Home tuition or part-time study without difficulty.

MODERATELY AFFECTED
70% Mild symptoms at rest, worsened to severe by physical or mental activity. Daily activity limited. Part time study at school/college is very tiring, and may be restricting social life. Part time work may be possible for a few hours in the day. With careful pacing out of activities and rest periods, one may discover windows of time during the day when one feels significantly better. Gentle walking or swimming can be beneficial.

60% Mild to moderate symptoms at rest. Increasing symptoms following physical or mental activity. Daily activity very limited. Study with others or work outside the home very difficult unless additional support is available, e.g. use of a wheelchair/quiet room for a rest period. Short (I-2 hours) daily home study/work may be possible on good days. Quiet, non-active social life possible.

MODERATE TO SEVERELY AFFECTED
50% Moderate symptoms at rest. Increasing symptoms following physical or mental activity. Mid-day rest may still be needed. Simple, short (1hr) home study/home activity possible, when alternated with quiet, non-active social life. Concentration is limited. Not confined to the house but may be unable to walk without support, much beyond 100/200m. May manage a trip to the shops in the wheelchair.

40% Moderate to severe symptoms following any activity. Care must be taken not to over-do one’s life style at this stage. Not con-fined to the house but unable to walk much more than 50/I00m, usually requiring aids such as walking stick/crutches. May manage a wheelchair trip to the shops on a quiet day. Requires 3 or 4 regular rest periods during the day. Only one ‘large’ activity possible per day – friend dropping by or doctor’s visit or short home study (half hour at a time) etc – with space usually requiring rest day/s between.

SEVERELY AFFECTED
30% Moderate to severe symptoms at rest. Severe symptoms following any physical or mental activity. Usually confined to the house but may occasionally take a quiet wheelchair ride or very short, gentle walk in the fresh air. Most of the day resting. Very small tasks possible but mental concentration poor and home study difficult. As mentioned in the report on ME to the Chief Medical Officer, (2002*4) and the DFES report on education for children with medical needs (2001*5), children may be too ill to access any education at all. This should be respected and kept under review.

20% Fairly severe symptoms at rest. Weakness in hands, arms or legs may be restricting movement. Unable to leave the house except very rarely. Confined to bed/settee most of the day but able to sit in a chair for a few, short periods. Unable to concentrate for more than one hour a day but can read for about 5-10 minutes at a time.

VERY SEVERELY AFFECTED
10% Severe symptoms following any activity. Weakness and pain in arms or legs. In bed the majority of the time but feeling more stable and less dizzy. No travel outside the house. Concentration very difficult indeed. A friend can be seen for ten minutes or so.

5% Severe symptoms almost continuously but may be possible to be propped up in bed for very short periods. Weakness and pain in arms or legs can give rise to paralysis; dizziness and nausea. Small, personal care may be possible (e.g. if washing equipment placed on the bed it may be possible to wash some parts of the body). As with 0%, sudden jerking movements can be a problem and what may be described as panic attacks are felt. No TV is possible but a little quiet music or audio book may be listened to for a few minutes. A friend can be seen for a minute for a hug and a few words.

0% Severe symptoms on a continuous basis. In bed constantly, feeling extremely ill even with permanent rest. Severe dizziness makes it almost impossible to be propped up in bed for longer than a few minutes at a time. Light and noise are very painful to the eyes and ears – curtains are closed and earplugs are needed. Severe pain almost anywhere in the body with the skin feeling very cold and extremely sensitive to touch. Unable to care for oneself at all; washing needs to be done a tiny bit at times throughout the day. Nausea and severe fatigue make eating extremely difficult. Liquid based food preferred – little and often. Occasionally, nasal feeding tubes are required when the energy to chew is completely spent. Any stimulus worsens the feeling of being severely ill, with no movement in the bedroom preferred. Any visitor to the room is almost impossible. Talking, even to the carer/family, is often impossible. This is often misread as being ‘selective mute’. Severe adrenaline rushes felt with heightened sensitivity; jumping and over reacting to doors shutting/door bell ringing, etc. Sleep pattern often completely reversed.

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July 29, 2009 - Posted by | Health Science

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