CFS-Allicin's Blog

Your Pathway To Better Health And A Brighter Future

Welcome to CFS-Allicin and Overview

Welcome to CFS-Allicin

CFS-Allicin Overview

Recent Research

Recent research has found evidence of chronic bacterial infection in people with CFS (see “The Science” in our “About CFS-Allicin” section). There are various protocols – known as combined antibiotic protocols (CAPS) – which aim to eliminate this infection from the body. These protocols vary in medications, recommended doses, and additional recommended supplements but all show promising results. There are not any definitive results for CFS as most of these protocols are relatively new and due to the controversy surrounding CFS research many patients are trying these protocols independently, not as part of a controlled research project.

Our Belief

We accept that this research is not yet definitive and may not apply to every person with CFS as it is an umbrella term and may encompass other illnesses not yet categorised, or identified. However, this website subscribes to the chronic infection theory and our information is all based on this.

Stealth Bacteria

It is hypothesised that a specific type of bacteria, known as stealth bacteria (also cell wall deficient bacteria, L-form bacteria, and including mycoplasma bacteria) can “hide” in the body where it is undetectable by regular blood tests and screening. This bacteria can mutate in the system and evade antibiotics by changing forms to avoid being killed. A combination of various types of antibiotics, designed to target the bacteria in its various forms is thought to be more effective in attacking the infection.

Allicin – A Natural Antibiotic

We have discovered a natural product – allicin, which has proven antibiotic properties – seems to be capable of doing the same thing. See “Allicin” section for further information.

“Herx” Reactions

Taking allicin capsules has been shown to produce a die-off reaction, medically known as a Jarisch-Herxheimer reaction (this is referred to as “Herx” for short). Herx reactions occur when bacteria (or other organisms) release toxins as they are being killed. When the toxins are being produced faster than the body can eliminate them, a return of symptoms is seen. This is a sign that the bacteria are being killed and generally suggests that the medication being used is effective. (Please note Herx reactions can be severe, in the case of a severe reaction please contact a medical professional.)

Noted Improvements

The following improvements have been reported by individuals with CFS who are currently taking allicin capsules. Improvements vary from person to person.

  • Increase in physical energy levels
  • Increase in mental energy levels
  • Reduction of general aches and pains associated with CFS
  • Reduction in severity of headaches and migraines
  • Lower blood pressure
  • Lower heart rate
  • Reduction of hayfever symptoms
  • Lessening of recurring infections
  • Overall feeling of improvement
We recommend anyone considering such treatment protocols fully researches all aspects of treatment before embarking upon said treatment. This website is intended only as a source of information, not as a medical advice website. We will not be held responsible for personal decisions, injury, or damage pertaining to treatment protocols, allicin, or any other supplements mentioned on this site.

July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin What Is Allicin?

What is Allicin?

Garlic RedAllicin is extracted from garlic. It is the substance in garlic which has the most powerful antibacterial properties. Allicin is manufactured by Allicin International, a UK-based company which uses a patented process, guaranteeing a high yield of allicin in a form that is quickly absorbed by the body. You will not get the same result taking garlic capsules or eating garlic – and allicin doesn’t smell!!

Allicin is sold in the UK as “AllicinMax” and is available in capsules, liquid and cream. AllicinMax capsules contain 180mg of allicin powder. Allicin International reports it is safe to take up to 777 AllicinMax capsules in one day!

AllicinMax can be used as a substitute for an antibiotic. It is also antiviral, antifungal, and antiparasitic.

How does Allicin work?

Flower Close UpAllicin disrupts the cell membrane biosynthesis – this means that it disrupts the system that is responsible for replication of the cell. It does this by inhibiting DNA polymerases and RNA synthesis.

When antibiotics are used against specific bacteria they tend to target one metabolic pathway, if the bacteria cannot ignore the destroyed pathway then the cell is killed. However, sometimes the bacteria can adapt – mutate – by using or developing an alternative pathway, and become resistant to the antibiotic’s effect.

Allicin destroys a large part of the bacteria, not just one pathway. The bacteria cannot adjust to this sort of destruction and so cannot become resistant to allicin in the way they can develop resistance to antibiotics.

(Information taken from http://www.mercola.com ©Copyright 2007 Dr. Joseph Mercola. All Rights Reserved. This content may be copied in full, with copyright, contact, creation and information intact, without specific permission, when used only in a not-for-profit format. If any other use is desired, permission in writing from Dr. Mercola is required.)


July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin Treating CFS With Allicin

How Do I Take the Allicin?

Vitamin CapsulesThere is no definitive programme to follow. Using Allicin to treat CFS is a very new discovery and as far as we are aware, no-one has yet successfully healed themselves from CFS using Allicin. What we have seen, over the last seven months, has been a massive, constant improvement.

We can only relate our experiences and our knowledge based on our own reading and researching. If you plan to embark upon a similar treatment programme, we would recommend reading as much information as possible, enabling you to make informed decisions with regard to the treatment.

We believe it is best to start off taking one AllicinMax capsule a day – one capsule contains 180mg of allicin powder. If the dose is strong enough to begin killing the infection, it is likely that it will elicit a Herx reaction, this is an indication that the treatment is working. Some people may require a stronger dose to elicit a reaction. There is the possibility that some people will not experience any reaction, but the allicin may still be helping, at the moment this is very much trial and error.

As the Herx reactions become less (this may be more tolerable, slightly less, or they may disappear completely) an additional allicin capsule can be added in. This may cause the Herx reactions to escalate again, indicating that the treatment is successfully killing the bacteria.

Some people may find they are able to increase the dose quite quickly, others may find that they build up the dose over a longer period of time. The literature suggests that as long as the Herx reactions are being experienced, the bacteria is dying. It is therefore safer to take a cautious approach than to try and rush the treatment. It is unlikely that trying to build up the treatment too quickly will beat the infection any faster, it may cause more problems in the body due to an overload of toxins.

The most important thing is to pay close attention to your body, be aware of any emerging patterns and try to read as much of the research as possible in order to understand what is going on in your body.

Time Scale

Artistic ClockThis should be a finite treatment – it should not be something that will have to be taken forever. Unfortunately there is no way of knowing, at the present time, how long the treatment will take.

Combined Antibiotic Protocols, such as the Marshall Protocol and the Wheldon Protocol estimate it will take up to three years to entirely rid the body of infection. They both also estimate that a return to a normal lifestyle will be possible in a much shorter time – the estimate is 12-18 months, although this may vary for each individual. On the Marshall Protocol website (www.marshallprotocol.com), Dr. Marshall makes a distinction between optimum health and a pre-CFS state of heath, believing that people will be even healthier after completing such a treatment protocol.

As Allicin works in a different way to antibiotics, it is difficult to say how accurate these estimates may be. For many of us, the most important thing is that we are seeing improvements, after being ill for so long, seeing a light at the end of the tunnel – even a very long tunnel! – is a fantastic feeling.

Also on Dr. Marshall’s website he says:

“I do think it is important that CFS and Lyme patients do face up to the extent of their illness, however. Think about this – it takes 2 years or more for the bacteria to be killed, at the fastest rate your body can kill them. It is absolutely amazing what that quantity of bacteria must have been doing while they were living in your tissues…”

From – http://www.marshallprotocol.com/forum32/1085.html

“…Imagine a lifetime of acquiring a variety (there are almost sixty identified) of pleomorphic bacteria that have been allowed to multiply and hide within the various tissues of your body.
It’s a long process because these bacteria are living within the cells of the immune system, deep in tissues that may be hard to penetrate with the antibiotics. You should see a gradual resolution of your disease symptoms but as long as you are responding to antibiotics with symptoms that wax and wane, there are still bacteria to be killed. It isn’t easy but you should feel encouraged by your Herxheimer reactions because it means that you are going to beat these nasty little critters.”

From – http://www.marshallprotocol.com/forum32/1304.html

“…Everything heals on the MP, but at differing rates. For example, neuropathy is slower to respond, and fibrosis is very slow. But the body has demonstrated that it can eventually recover from just about everything…”
From – http://www.marshallprotocol.com/forum32/2495.html

Please note: The Marshall Protocol and Wheldon Protocol are currently experimental treatments for various conditions, including chronic fatigue syndrome, fibromyalgia, sarcoidosis, multiple sclerosis and many more. We have been treating chronic fatigue syndrome using allicin instead of traditional antibiotics and finding significant improvements. This treatment is also experimental.

We are not in any way connected with either the Marshall Protocol or the Wheldon Protocol.


July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin What Is CFS?

What Is CFS?

CFS (also ME, PVFS) is a disabling condition which causes severe fatigue and low physical and mental energy levels. Sufferers also experience many other seemingly disparate symptoms which may include headaches, muscle spasms and pain, breathing problems, digestive problems, neurological symptoms, hypotension and many others.

A diagnosis of CFS is usually a diagnosis of exclusion – i.e. all medical tests come back clear. There is no accepted medical treatment for the condition, at present.

Onset of Illness

Some people have a sudden onset where they become ill for an unknown reason. Others seem to have a gradual decline in health and others seem to become ill immediately following a viral or bacterial infection.

Symptoms

In order for CFS to be diagnosed, a number of criteria must be met. In 2007 the UK National Institute for Health and Clinical Excellence issued the following criteria as guidance for GPs:

  • Fatigue
    • with a new or specific onset
    • is persistent or recurrent
    • is unexplained by other conditions
    • has resulted in substantial reduction in activity characterized by post-exertional malaise and/ or fatigue (typically delayed, for example by at least 24 hours, with slow recovery over several days

And one or more of the following symptoms:

  • difficulty sleeping, such as insomnia, hypersomnia, unrefreshing sleep, a disturbed sleep-wake cycle
  • muscle and/ or joint pain that is multi-site and without evidence of inflammation
  • headaches
  • painful lymph nodes without pathological enlargement
  • sore throat
  • cognitive dysfunction, such as difficulty thinking, inability to concentrate, impairment of short-term memory, and difficulties with word-finding, planning/ organizing thoughts, and information processing
  • physical or mental exertion makes symptoms worse
  • general malaise or flu-like symptoms
  • dizziness and/ or nausea
  • palpitations in the absence of identified cardiac pathology

(Information from NICE website )

Conventional Treatment Options

Treatment options offered by the NHS are cognitive behavior therapy (CBT) and graded exercise therapy (GET). CBT may be beneficial to people suffering depression alongside CFS, or in helping people adjust their lifestyles to cope with being ill. It is unlikely to help beyond this. Many patient groups believe GET trials have been fundamentally flawed in experiment design and although this is still officially recommended, most patient groups would like to see this option removed.

Other options include prescription drugs for pain and sleep, and managing other symptoms.

Unconventional Treatment Options

Some sufferers benefit from complementary therapies such as acupuncture, reiki, gentle yoga or qi gong or similar. Others benefit from certain supplements or herbs.

Emerging regimes, such as the one discussed on this website, that use multiple supplements or drugs, or a combination of the two are producing good results, although research is in very early stages.

July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin The Science

This page will be updated regularly.

Liquid into FlaskCFS suffers in research terms because little is known about the condition. This means many researchers are working on various hypotheses instead of collaborating on a proven theory.

Unfortunately early research on CFS was directed down a psychiatric route and, despite more recent biomedical research producing good results, this psychiatric research route has not yet disappeared. Multiple Sclerosis and Parkinson’s Disease were once believed to be psychosomatic conditions until biological evidence was found. Western medicine has a tendency to label diseases which are not yet understood as psychiatric conditions.

Many CFS patients have suffered due to this mis-labelling however newer research methods are enabling researchers to conduct more biomedical research on existing patients and hopefully this research will soon produce some definitive answers.

As stated elsewhere on this site, we subscribe to the chronic infection theory and evidence for this theory is presented here.

Evidence of Chronic Infection

Medicine BottleResearch has shown that the incidence of infection in patients with CFS is significantly higher than in the general population. Specialist tests are required to test for the presence of hidden infections.

Endresen (2003). Mycoplasma blood infection in chronic fatigue and fibromyalgia syndromes. Rheumatol Int. 23(5): 211-5

This study showed evidence of mycoplasma infection in 50% of patients with CFS and related syndromes compared to only 10% of healthy controls. The researchers used polymerase chain reaction (PCR) tests for this study.

Nicolson, Gan & Haier (2003). Multiple co-infections (Mycoplasma, Chlamydia, human herpes virus-6) in blood of chronic fatigue syndrome patients: association with signs and symptoms. APMIS 111(5): 557-66

This was a follow up to a previous study which showed 52% of CFS patients had evidence of mycoplasma infection. This study examined the blood of both mycoplasma positive and negative patients for chlamydia pneumoniae and HHV-6 and found little difference. CFS patients tested significantly higher than control groups for c.pneumoniae (7.5% vs. 1%); and HHV-6 (30.5% vs. 9%). Researchers also found no correlation between types of co-infection and severity of symptoms; but they did find that patients with co-infections had more severe symptoms than those with only one type of infection.

Nijs, Nicolson, De Becker, Coomans, De Meirleir (2002). High prevelance of Mycoplasma infection among European chronic fatigue syndrome patients. Examination of four Mycoplasma species in blood of chronic fatigue syndrome patients. FEMS Immunology and Medical Microbiology. 34(3): 209-14

This study found evidence of mycoplasma infections in European patients where previous studies had used American patients. Results were replicated and patients with CFS were found to have a higher incidence of infection (68.6%) compared to healthy controls (5.6%).

Nasralla, Haier & Nicolson (1999). Multiple mycoplasma infections detected in blood of patients with chronic fatigue syndrome and/or fibromyalgia. European Journal of Clinical Microbiology and Infectious Diseases. 18(12): 859-65

Researchers tested for specific mycoplasma infections in patients with CFS after finding evidence of mycoplasma infection in 60% of CFS patients tested. Multiple infections were found in 52.7% of patients.

Please note that clicking on these links will take you to the abstract of the article.

Why Take Allicin?

Sprouting GarlicResearch is in early stages and therefore at this time it is impossible to be sure that stealth bacteria actually cause CFS and related illnesses. It may emerge that this is the case, or it may prove to be a factor, however what is being noted at the moment, is that getting rid of these infections produces a great improvement in health.

These types of bacteria are capable of hiding from the body’s immune system. They can easily move through the body, moving through cell membranes, and it is thought that they are capable of penetrating the blood-brain barrier. As they cannot be detected though regular blood tests, it may be impossible to confirm the presence of such infections without expensive, specialist tests.

Having one infection is believed to make the body more susceptible to multiple infections – other types of bacteria, viruses, fungi, or parasites. This further compromises the body’s ability to heal itself and leads to poorer health.

Antibiotic protocols target bacteria by combining various antibiotics and altering the doses administered – either building up to high doses, or by varying the dose over time. This is to prevent the bacteria building up immunity to the antibiotics, and also to target the bacteria in its various forms. Antibiotics attack by targeting a specific pathway in the bacterium. If this pathway is successfully destroyed, the bacterium will die; however if the organism can adapt it can become resistant to the antibiotics.

Allicin targets more of the bacterium which makes it much more difficult for it to become resistant to the allicin. Allicin has also been proven effective against viruses, fungii, and parasites. Therefore it will target any possible infections that may be in the body.

If you are on an antibiotic protocol, it may be worth investigating the added benefits of adding allicin to the protocol. However this should be done with caution and only under the supervision of a GP or protocol-supervisor as additional killing of the bacteria may cause additional herx reactions, placing the body under further stress.

Allicin Research

Pestle and MortarCutler & Wilson (2004). Antibacterial activity of a new, stable, aqueous extract of allicin against methicillan-resistant Staphylococcus aureus. British Journal of Biomedical Science. 61(2):71-4

This study showed that allicin is effective against MRSA.

Josling (2001). Preventing the common cold with a garlic supplement. A double-blind, placebo controlled survey. Advances in Therapy. 18(4): 189-193

This study showed that people who took allicin over a period of 12 weeks had significantly fewer colds than a control group given a placebo (24 vs. 65). The colds suffered by the group taking allicin were shorter than those suffered by the control group. The researchers conclude that taking allicin helps prevent the common cold.

Please note that clicking on these links will open PDF documents showing the full article.

July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin Other Protocols

Combined Antibiotic Protocols

There are currently a few antibiotic protocols being trialled. Most of these have websites or online forums where information is available. While this website focuses on CFS, these protocols are being tested for a wide variety of conditions, including but not limited to:

  • Arthritis
  • Asthma
  • Chronic Fatigue Syndrome (also referred to as ME & CFIDS)
  • Chronic Infections
  • Chronic Inflammatory Conditions
  • Fibromyalgia
  • Heart Disease
  • Lupus
  • Lyme Disease
  • Macular Degeneration
  • Multiple Sclerosis
  • Sarcoidosis

These protocols are currently experimental treatments and it is recommended that you thoroughly research any potential treatment. While these protocols are at very early stages in research terms, there are indications that they are producing good results. At the moment the eventual outcome of these protocols is unknown. We say all this to urge caution and sensibility – it is very important to educate yourself – however, we are having great success using allicin, based on the chronic infection theory and are very hopeful that this theory will be proved correct.

Marshall Protocol

The Marshall Protocol was initially created to treat sarcoidosis. There seems to be some controversy surrounding the MP due to its unconventional use of certain prescription medicines, however some people have reported significant improvements. The website contains thorough explanations as to the theories upon which it is based:

http://www.marshallprotocol.com

Wheldon Protocol

The Wheldon Protocol was initially created as a treatment for MS:

http://www.davidwheldon.co.uk/ms-treatment.html

This website is a good reference source for people with various conditions on the WP:

http://www.cpnhelp.org

The WP uses supplements along with antibiotics and therefore has lots of good information about supplements. See:

http://www.cpnhelp.org/allsupplementschart

Scroll down to download PDF supplement chart.


July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin My Story – “I think I am curing myself…”

My Story – “I think I am curing myself…”

GymnasticsI developed post-viral fatigue syndrome (PVFS) after a ‘flu-type illness in January 2005 while studying for my MSc. My illness fluctuated in severity for two years, but at all times I was too ill to lead a normal life. After two years of trying various supplements, vitamins and diets I came across some research that is helping me return to better health.

Chronic Infection Theory

This research stated that CFS (or ME or PVFS) can be caused by chronic bacterial infection. A particular type of bacteria, known as “stealth bacteria” or “cell wall deficient bacteria” can mutate in the body, surviving in various forms and attacking when the body is under stress (physical or emotional). These bacteria do not show up on regular blood tests and can hide in the immune system, meaning the body may not even realise they are there. This fitted with the onset of my illness so I looked into treatment options.

Treatments

Treatment protocols are described online and usually involve “combined antibiotic protocols” (CAP) – a combination of various antibiotics, designed to target the bacteria in their various forms, help the body activate the immune system and ultimately destroy the infection. As the bacteria are killed they release toxins causing what is known medically as a “herxheimer reaction” also referred to as “die-off”. This can cause a worsening of symptoms before any improvement is felt. Different protocols recommend taking various supplements or other prescription drugs to support the body in this process.

Allicin – A natural antibiotic

Due to my personal circumstances (I was living with my parents abroad, due to my illness and my travel insurance would not cover an existing condition) I did not have regular access to a doctor, and therefore prescriptions. A nutritionist had told me about allicin which is a natural antibiotic and I decided to take allicin capsules based on the chronic infection theory. Due to the possibility of herx reactions I started on one capsule a day along with other supplements selected to boost my antioxidant levels and help my body cope with the killing. Taking allicin made me feel awful. I had expected that, based on my research and persisted with the treatment. After a few weeks the herx reactions had calmed down and I began taking two capsules a day. Again, I suffered from an increase in my symptoms – increased exhaustion, headaches and muscle aches. Again, after a few weeks these calmed down. Initially, I did not feel as if I was “getting better”; after two months taking allicin I began to realise I had not had a “bad day” for a while. After three months I felt as if I was improving a little. After four months I began to genuinely believe that allicin was going to save me from this dreadful illness. At this time I had improved from about 30% functional ability to about 70% – I was still a long way from being back to normal, but I definitely felt as if I was on my way.

I think I am curing myself…

Run Baby RunBased on my experience at that stage I decided to share my story on a forum of which I am a member. I called it “I think I am curing myself…” I hoped that other people might try allicin and that it would help them and – if it did – I would try to publicise this and offer hope to other CFS sufferers.

That was two months ago, it is a bit early for any dramatic results, but out of eleven people from the forum who started taking allicin capsules and posting regular updates, nine of these people are feeling small improvements already. I find this very encouraging!

Continued Improvement

I have now been taking allicin for seven months and continue to improve, I am about 80% now (see AYME scale for generalisation of functional ability). I am currently taking eight capsules a day. Notably, my heart rate has decreased from 98bpm to 76bpm, a normal rate. The antibiotic protocols are recommended for at least two years – it is estimated it will take at least that amount of time to eradicate the bacteria from the body. I will continue to take allicin until I am fully recovered and I believe it will take me there.

Additional Information

In additional to the allicin capsules, I take various other supplements. Some of these supplements I have taken for the duration of my illness – including astragalus for immune support and Co-Enzyme Q10 for energy and heart health. When I started taking the allicin, I also started taking Neem campsules, N-Acetyl-Cysteine and antioxidants. These are not responsible for my improvements, but I believe they have helped support my system. More information can be found in the FAQs section of this website.

July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin Getting well at last!

Getting Well At Last!

For some people it is hard to pin down an actual date or period in time when their illness first started, but for me that period was a holiday in Candolim, Goa in November 1995. I had an ear infection from swimming in dirty water. The water looked clear to me, cascading out of the (DudSagar Falls) mountains into a deep pool, but sure enough, I had caught some bug in it. I was treated with anti-biotics over there and also my own doctor treated me with more when I returned home.

I couldn’t return to work as I was now nursing a very bad ‘flu. The ‘flu didn’t clear up for weeks but I returned to work after 2 weeks of it, and I found myself struggling to concentrate at my job. I was mis-diagnosed with thrombocytopenia by my GP after having blood tests and told that there was nothing he could do for me, and to carry on at work. To cut a long story short, I eventually lost my job.

Diagnosis of CFS

After changing GP’s I had many more blood tests, bone marrow samples were taken, and stool tests and all came back clear. He now gave me a diagnoses of CFS, I had passed all the required criteria for this illness. He told me there was no treatment for CFS and by pacing myself I would eventually be cured.

Some years passed, and my daughter told me of a doctor in Bath that specialized in CFS. A builder that was working on her house had told her of his own partial recovery from CFS and recommended that I make an appointment to see the doctor. Dr David Dowson put me on an anti-Candida diet and gave prescription drugs and supplements. 3 months later I was very much better. On the AYME scale I judge I was at about the 35% mark. I have continued with the diet over the years in a very loose way and have sinned many times, but gradually I realized that I was actually doing a Low GI diet.

Dr Dowson explained to me that the heavy use of the wrong type of antibiotic had wiped out all the bacteria in my gut, and an overgrowth of Candida resulted. Candida is a yeast and produces ethanol alcohol when any sugars are ingested, fomenting with the yeast. The ethanol alcohol was making me “drunk” and was giving me symptoms like a very bad and permanent hangover. Cutting out wheat, dairy, junk foods and sugars of every kind from my diet improved my symptoms. The prescription drug Fungalin he gave me was of the kind used to treat oral thrush. This left me with a leaky gut.

Discovering Allicin

Some more years passed me by, and one day for some reason I visited the Foggy Friends website where I saw a post entitled “I think I am curing myself”. Intrigued, I read everything and visited every link in an effort to find out as much as I could about this little known extract called allicin. The arguments seemed to make sense that allicin could be making the author better, so I decided to buy some capsules and try it for myself. Nothing ventured, nothing gained as the saying goes, after all it is a natural substance derived from garlic so what harm could it do me?

After a cautious start I eventually got some herx reaction when I added the third or fourth capsule. Continuing to increase the dose in watchful and careful steps over the weeks, I now take 10 caps a day and have done so for some weeks now, having decided to stop at this dose for a breather.

Noted Improvements

I now rate myself on the AYME scale at level 80%. Thats an increase from 35% to 80% in a matter of months since taking the allicin. OK, I am still not cured of CFS but I was not even contemplating being this well so soon.

My leaky gut has been cleared up with the allicin and my mind has been clear since near the start of taking it. Energy levels have gone up and pain down to nearly non existent. I still have to pace myself but at a higher level now as I still get tired towards the end of the day. My sleep has improved and unrefreshing sleep is no longer the norm. Most mornings I now wake and feel like I have had a good sleep for a change.

Herx Reactions

If there is a down side to taking allicin it has to be the herx reactions. These have to be endured for an improvement to be gained from this treatment. I suffered bad hangover type symptoms, very bad headaches and diarrhea for the most part, sprinkled lightly with short lived ‘fluey colds throughout. The diarrhea was usually accompanied by a return of the usual CFS symptoms for a while, then they were gone the next day along with the diarrhea. At a steady 10 caps a day, I now have a pattern emerging of bad headache one day followed the next day by diarrhea and all gone without trace the next. This repeats at about once every week. I can live with that.

Getting well at last!

I can also live with being more active and thinking clearly. I can concentrate for very much longer, can go for longer walks, ride a recumbent bicycle slowly for miles (if its not too hilly), can take bus rides and drive for short trips on my own too. I used to feel trapped in my sick body but not anymore. I can even make websites!

For me the most enjoyable part of my allicin treatment is being able to enjoy my grand children having missed out on much of their young lives. I have a 2 year old, one of 6 and another of 7. I have missed nearly 12 years of my life through CFS and at age 60 have something to look forward to once again. The light at the end of the long dark tunnel is very much in sight and I will soon be walking out into it. Maybe in a year’s time I can go back to work and earn some money. Now wouldn’t that be something!

July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin Latest News and Research

Allimax is now AllicinMax in the UK

Poor Apple with PlasterFrom August 2007 the product Allimax, previously licensed by Allicin International, will no longer contain allicin powder. Allimax now contains only garlic powder which does not have the same proven antibiotic effects as allicin.

Allicin powder is now available as the brand name AllicinMax available in capsules containing 180mg of allicin powder. AllicinMax is available to buy from Boots the Chemist and online at www.quickvit.co.uk.

In all other countries Allimax will continue to contain allicin.

Allimax US to Publish Study into Lyme Disease

ElixirAllimax US is set to publish its study into using Allicin to treat Lyme disease at the end of this year. Lyme disease is contracted through tick bites, however recent research suggests it may also be contracted through mosquitoes, spiders, stinging flies, mites and fleas.

“Only 10-20% of the total Lyme bacterial load in the extra-cellular space is the spirochete form”

“The remaining 80-90% of Lyme bacterial load is inter-cellular in the stealth-cell-wall-deficient form, hidden from the eyes of the immune system, therefore preventing an attack”

“Most Lyme antibody tests are made to detect this 10-20% of spirochete forms and there are no conventional accepted markers for the 80-90% of inter-cellular forms which constitute the majority of the Lyme bacterial load.”

Stricker et. al. (2002). Long-term decrease in the CD-57 lymphocyte subset in a patient with chronic Lyme disease. Annals of Agricultural and Environmental Medicine, 9, 111-113

In the Allimax US study, ten patients with chronic Lyme disease were selected to try the alternative treatment. One of the key factors in the study was actively changing the terrain of the body to make it more difficult for bacteria to survive. Participants achieved this by drinking sufficient amounts of purified water; following a recommended diet, and taking recommended supplements for nutritional support.

Patients started taking one 450mg allicin capsule 3 x a day and increased to two 450mg capsules 3 x a day.

Various tests showed measured improvements as the study progressed.

Full results will be published later this year.

“Biological Terrain is not a new concept but was part of a great debate in the early 1800s. The argument that changed the course of medicine was Louis Pasteur who had the opinion that non-changeable microbes caused disease (monomorphism), on the other side was Antoine Bechamp who stated that the microbe changed according to biological terrain. Not until his deathbed did Pasteur change his mind. “The microbe is nothing the terrain is everything.” Unfortunately the road was paved for the Germ Theory and it was too late for medicine to turn around. Maintaining the proper balance in the body’s pH (or Biological Terrain) can positively affect all major body systems.

“A Lyme patient with a strong immune system will be able to defend himself against outside invaders. The fact is that many people are bitten by ticks and mosquitoes and don’t have health problems that are associated with Lyme disease.”

All information courtesy of Allicin US – www.allimax.us and www.allimed.us

July 29, 2009 Posted by | Health Science | Leave a comment

CFS-Allicin FAQ

FAQs
From the list below choose one of our FAQs topics, then select an FAQ to read. If you have a question which is not in this section, please contact us.

What is Allicin?

Where Can I Buy Allicin?

How Many Capsules Should I Take?

How Many Capsules is it Safe to Take?

Will I Need to take Allicin Forever?

Does Allicin Taste Like Garlic?

Can I Take Allicin with my Medicines?

What Else can I Take Allicin For?

Chronic Infections?

How Long Does it Take to Work?

What Are ‘Herx’ Reactions?

Can I Take Anything For the Herx?

What Supplements Should I Take?

Where Can I Buy Supplements?

What is the AYME scale?

What is Allicin?

Allicin is a highly unstable substance produced from garlic which has been shown to be powerfully antibacterial, antiviral and antifungal. Allicin International holds the patent for producing stabilised allicin and only products with the Allisure® will guarantee a high yield of allicin in a form that is quickly absorbed by the body. You will not get the same result taking garlic capsules or eating garlic. For futher information on how allicin is made go to http://www.allimax.com.

Research has shown allicin to have additional benefits in the body, including being anti-tumour, anti-cancer, lowering blood pressure, treating cardiovascular disease and also diabetes; as well as boosting the immune system. These are mostly at early research stages at the moment, but producing very positive results.

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Where Can I Buy Allicin?

From August 2007 in the UK Allicin is sold under the brand name AllicinMax and this can be bought at Boots the Chemist, or online at http://www.quickvit.co.uk and also http://www.nutritioncentre.co.uk. AllicinMax capsules contains 180mg of allicin powder and are sold in packs of 30 capsules.

Worldwide, allicin is also sold under the brand name Allimax and additionally Allimed and AlliUltra in the USA.

Please note that in the UK “Allimax” is a disputed trademark and from August 2007 Allimax capsules sold in the UK contain no allicin – just garlic powder. Check for the Allisure® guarantee.

TopHow Many Capsules Should I Take?

At this moment in time there is no definitive guidelines as to how many allicin capsules will successfully treat chronic fatigue syndrome. The best guidance is to start off with one capsule a day and be aware of any reactions in your body. For some people, one capsule a day will elicit a herxheimer reaction, indicating that the dose is sufficient to begin killing any bacteria or other infections. For other people a higher starting dose is required. Please read through our information and collective experiences to help understand the process; this will enable you to make an informed decision as to whether allicin treatment may help you.

TopHow Many Capsules is it Safe to Take?

Allicin International claims it is safe to take up to 777 capsules at one go! So basically the chance of an overdose is very slim.

TopWill I Need to take Allicin Forever?

Not in such high doses! The theory on which this idea is based suggests that eventually the infections will be killed which means the treatment is finite. It is difficult to assess a time scale as each individual will be different. You may wish to continue taking allicin at a low ‘maintenance’ dose as it does offer good immune support.

TopDoes Allicin Taste Like Garlic?

Allicin does not cause a lingering garlic odour in the way that taking garlic capsules does. In some cases people have reported a strong smell and taste of garlic while taking the capsules but it is thought that this may be due to some people having hypersensitive senses of smell/taste due to cfs. The majority report no adverse smell or taste in taking the allicin capsules.

TopCan I Take Allicin with my Medicines?

Allicin International claims that allicin can be taken with all medications with no adverse effects. However they do advise that if you are diabetic or on blood thinners or blood pressure medication you check with your doctor. Always err on the side of caution – if in doubt, please check with your doctor.

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What Else Can I Take Allicin For?

Allicin has been proven to have powerful antibiotic, antiviral and antifungal properties. Research suggests allicin may be beneficial in many conditions, including:

  • Acne
  • Cancer and helping the body cope with treatment
  • Candidiasis
  • Chronic Fatigue Syndrome
  • Coldsores and certain other Herpes infections
  • Colitis
  • Common Colds & Infections
  • Diabetes
  • ‘Flu
  • H-Pylori
  • Hayfever
  • Heart Health
  • High Blood Pressure
  • IBS
  • Leaky Gut
  • Lyme Disease
  • MRSA
  • Nail Fungus
  • Parasites
  • VRSA

Ongoing research is investigating links between infections such as chlamydia pneumoniae and Alzheimer’s Disease, Parkinson’s Disease and Multiple Sclerosis as well as heart conditions and high blood pressure – which can lead to heart attack and stroke. This research is in early stages and nothing definitive has emerged, but if any link emerges, then it may be possible that taking allicin may help reduce the chance of developing certain conditions. Please note this is currently speculation.
Chronic Infections?

This natural treatment is based on emerging research which suggests that people with chronic fatigue syndrome may suffer from chronic infections. New technology and probing into different body tissues has allowed researchers to discover hidden infections which cannot be detected with normal blood tests. As this is relatively new research, it may take some time to become an accepted fact. It may eventually be shown to be the cause of CFS, or it may be an additional factor. At the moment this is unknown, however what some treatment protocols are showing, is that getting rid of the infection(s) is of great benefit to sufferers.

TopHow Long Does it Take to Work?

Again, this depends on each individual. The Marshall Protocol and the Wheldon Protocol which are based on a similar theory, but use antibiotics, estimate it will take up to three years to fully eradicate the infections from the body. However, it is believed that a return to a normal lifestyle will be possible in less time than this. In our experiences, we began to see little improvements very early on – within the first two months. As we are all at different stages and taking different amounts of allicin, it is difficult to specify exact times, but what became obvious was that everyone was recovering a feeling of hope and positivity, indicating that the little improvements were steady and constantly building.

TopWhat Are ‘Herx’ Reactions?

Jarisch-Herxheimer reactions (or ‘die-off’) occur because the bacteria release toxins as they are killed. Herx reactions can vary in severity and in some cases may require medical treatment – this is why we advocate a very gradual approach if you make the decision to try this, or a similar, form of treatment. Herx reactions were discovered by a Dr. Jarisch and a Dr. Herxheimer at the turn of the 20th century. Both doctors reported an escalation of symptoms after treatment for syphilis before the patient was healed. Herx reactions may seem like a return of severe symptoms, or a particular symptom and are likely to make you feel worse before you feel better. It is believed that they happen when the toxins are being produced at a faster rate than the body can eliminate them.

TopCan I Take Anything For the Herx?

Drinking lots of water or herbal teas will help the body flush out the toxins. We also recommend raising antioxidant levels in the body, as this will help too. Eating the recommended five-a-day portions of fruit and vegetables is a good start, but to significantly raise antioxidant levels this way at least eight-a-day is recommended. You can take antioxidant supplements including vitamins A,C,E and Selenium – these are usually relatively inexpensive.

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What Supplements Should I Take?

There is some evidence that some supplements are of benefit to some people with CFS and not to others. It is therefore difficult to produce a definitive list of supplements for anyone with CFS.

The Wheldon Protocol advocates certain supplements and gives a lot of information about why the supplement may be useful. That supplement chart can be downloaded here:

http://www.cpnhelp.org/allsupplementspdf

Supplements which may be useful include:

  • N-Acetyl-Cysteine
    • May help to expose bacteria and aid in destruction
    • Precursor to glutathione, helps enhance glutathione levels in body
  • Alpha Lipoic Acid
    • Precursor to glutathione, helps enhance glutathione levels in body
    • Antioxidant
  • Neem
    • A purifying herb with antibacterial and antiviral properties
  • Vitamins A,C & E
    • Antioxidants
  • Selenium
    • Antioxidant
  • Co-Enzyme Q10
    • Supports mitochondrial function and enhances cell energy production
    • Support the heart
  • Probiotic/Acidophilus
    • Promotes healthy gut flora balance
    • Is not destroyed by allicin; is destroyed by conventional antibiotics

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Where Can I Buy Supplements?

The following sites are sites that we use, or that we have been notified about that seem to offer fair prices and good service. There are many more websites offering the same supplements if you wish to shop around.

Links coming soon!

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What is the AYME scale?

*Ability Scale For Children And Young People With ME*
*The ability scale is used with permission from AYME*

Please note: The ABILITY SCALE has been drawn up for children and young people. We feel it is equally suited to adults and should only be used as a guide.

When using this scale it is important to remember that:

  • Flexibility in its use will help all concerned
  • There is no predictable pattern to M.E.
  • Many may fall between each noted percentage
  • Fluctuations will occur over short periods of time

Flexibility
This scale should be viewed flexibly; used to assist children and young people to pick that which best describes their functional ability level. It is important for them to have significant input into their own chart, thus increasing personal control over their illness. It may be that a young person is at a different point on the scale regarding their mental functioning from their physical ability. Clinicians and carers should not view 50% ability as meaning, for example, that a patient is able to walk half the distance of a healthy person. Terms such as ‘part-time’ should be viewed as a ‘few hours’, but only the child or young person will really know how much is right for them.

Predictable Pattern
It should not be assumed that movement on the scale means the beginning of a continued downward slide or continued improvement. Young people can make sudden, large jumps, or become stable at one level for a time and then make a sudden or gradual move in either direction. Large increases are not, necessarily, indicative of ‘being over ME’. Careful and supportive management, with the young patients being able to pace themselves in a way that is most comfortable to them, will see improvement over time. It may take many days to recover from an activity, mental or physical, that pushes them beyond their capability.

Falling between scales
Young people may find themselves as falling between the noted points on the scale. They should be encouraged to fit in their own wording that matches their present capacity and functioning.

Fluctuations
Fluctuations on the scale may occur, with variations often seen over single days or weeks, especially if the young patient is expected to do more than can be managed with ease. It may be useful to note the point on the scale on a ‘good day’ as well as a ‘bad day’.

AYME Ability Scale – original scale published in Somebody Help ME (1995*3) by Jill Moss

FULLY RECOVERED
100% No symptoms even following physical or mental activity. Able to study and work full time without difficulty, plus enjoy a social life.

VIRTUALLY RECOVERED
95% No symptoms at rest. Mild symptoms following physical or mental activity – tire rather easily but fully recovered next day. Able to study or work full time without difficulty but a slight restriction on social life.

MILDLY AFFECTED
90% No symptoms at rest. Mild symptoms following physical or mental activity – tire easily. Study/work full time with some difficulty. Social life rather restricted with gradual recovery over 2/3 days.

80% Mild symptoms at rest, worsened to moderate by physical or mental activity. Full time study at school/ college is difficult, as is full-time work, especially if it is a crowded, noisy or busy environment. Home tuition or part-time study without difficulty.

MODERATELY AFFECTED
70% Mild symptoms at rest, worsened to severe by physical or mental activity. Daily activity limited. Part time study at school/college is very tiring, and may be restricting social life. Part time work may be possible for a few hours in the day. With careful pacing out of activities and rest periods, one may discover windows of time during the day when one feels significantly better. Gentle walking or swimming can be beneficial.

60% Mild to moderate symptoms at rest. Increasing symptoms following physical or mental activity. Daily activity very limited. Study with others or work outside the home very difficult unless additional support is available, e.g. use of a wheelchair/quiet room for a rest period. Short (I-2 hours) daily home study/work may be possible on good days. Quiet, non-active social life possible.

MODERATE TO SEVERELY AFFECTED
50% Moderate symptoms at rest. Increasing symptoms following physical or mental activity. Mid-day rest may still be needed. Simple, short (1hr) home study/home activity possible, when alternated with quiet, non-active social life. Concentration is limited. Not confined to the house but may be unable to walk without support, much beyond 100/200m. May manage a trip to the shops in the wheelchair.

40% Moderate to severe symptoms following any activity. Care must be taken not to over-do one’s life style at this stage. Not con-fined to the house but unable to walk much more than 50/I00m, usually requiring aids such as walking stick/crutches. May manage a wheelchair trip to the shops on a quiet day. Requires 3 or 4 regular rest periods during the day. Only one ‘large’ activity possible per day – friend dropping by or doctor’s visit or short home study (half hour at a time) etc – with space usually requiring rest day/s between.

SEVERELY AFFECTED
30% Moderate to severe symptoms at rest. Severe symptoms following any physical or mental activity. Usually confined to the house but may occasionally take a quiet wheelchair ride or very short, gentle walk in the fresh air. Most of the day resting. Very small tasks possible but mental concentration poor and home study difficult. As mentioned in the report on ME to the Chief Medical Officer, (2002*4) and the DFES report on education for children with medical needs (2001*5), children may be too ill to access any education at all. This should be respected and kept under review.

20% Fairly severe symptoms at rest. Weakness in hands, arms or legs may be restricting movement. Unable to leave the house except very rarely. Confined to bed/settee most of the day but able to sit in a chair for a few, short periods. Unable to concentrate for more than one hour a day but can read for about 5-10 minutes at a time.

VERY SEVERELY AFFECTED
10% Severe symptoms following any activity. Weakness and pain in arms or legs. In bed the majority of the time but feeling more stable and less dizzy. No travel outside the house. Concentration very difficult indeed. A friend can be seen for ten minutes or so.

5% Severe symptoms almost continuously but may be possible to be propped up in bed for very short periods. Weakness and pain in arms or legs can give rise to paralysis; dizziness and nausea. Small, personal care may be possible (e.g. if washing equipment placed on the bed it may be possible to wash some parts of the body). As with 0%, sudden jerking movements can be a problem and what may be described as panic attacks are felt. No TV is possible but a little quiet music or audio book may be listened to for a few minutes. A friend can be seen for a minute for a hug and a few words.

0% Severe symptoms on a continuous basis. In bed constantly, feeling extremely ill even with permanent rest. Severe dizziness makes it almost impossible to be propped up in bed for longer than a few minutes at a time. Light and noise are very painful to the eyes and ears – curtains are closed and earplugs are needed. Severe pain almost anywhere in the body with the skin feeling very cold and extremely sensitive to touch. Unable to care for oneself at all; washing needs to be done a tiny bit at times throughout the day. Nausea and severe fatigue make eating extremely difficult. Liquid based food preferred – little and often. Occasionally, nasal feeding tubes are required when the energy to chew is completely spent. Any stimulus worsens the feeling of being severely ill, with no movement in the bedroom preferred. Any visitor to the room is almost impossible. Talking, even to the carer/family, is often impossible. This is often misread as being ‘selective mute’. Severe adrenaline rushes felt with heightened sensitivity; jumping and over reacting to doors shutting/door bell ringing, etc. Sleep pattern often completely reversed.

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July 29, 2009 Posted by | Health Science | Leave a comment

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